I enjoy reading mommy blogs. Quite often I end up reading
blogs of mommies to kids with special needs, and I’m always struck by how much
I can relate.
My daughter is totally normal: neuro typical, even highly
intelligent. Physically normal: squarely in normal weight-height distribution
and abilities for an almost 5 year old. Yes, she’s strong willed, but no one, not her teachers,
not the family therapist she met with for several months, not her pediatrician,
has ever suggested that her strong will and knack for defiance was anything
other than normal behavior.
So what do I have in common with a mom to an autistic child, or a physical disabled child, or learning disabled child?
I think it’s motherhood itself. Whether our child was
planned or not, we all cherished hopes and dreams about her. We all envisioned
the future with this little tiny being – a person formed out of our physical
flesh and blood. We all thought about breast feeding, about Santa Claus and the
tooth fairy and playgrounds and pools. We all thought about dressing our little
angel up in adorable outfits, and watching his first steps, recording her first
words, reading his first book. Some of us went further: dreaming about teaching
our child how to sing or dance or play sports; dreaming about driving lessons
or meditation techniques. We vowed to pass on our wisdom so our kid wouldn’t
suffer through 7th grade the way we did. We looked at our driveways
and considered how we could fit a 3rd car there for our teen driver.
And then, inevitably, our child is born and has the nerve to be unique.
There’s no mistaking my daughter for someone else’s child:
except for her hair color and big blue eyes, she IS me. Her body, her face, her
mouth, her hands, her imagination: it’s all me. Her perfectionism, her desire
to behave perfectly in public, her frustration with having to practice any
skill: it’s all me.
So why is it so challenging for me to raise her?
Because she is NOT me. She is her own person. Half her DNA
comes from her dad. Half her personality comes from him. And all of her
environment is different from mine: different parents, different city,
different culture.
At a certain point, every mom’s dream about motherhood collapses into the reality of the child we have borne.
This is why I can relate
so strongly to blogs about special needs children. Because although my daughter
is thoroughly normal, she is NOT what I expected. My fantasy of motherhood was
shattered just as much as any other mom’s fantasy. Granted, a lot of my dreams
are still intact: my daughter walks and talks; she’ll read and graduate high
school; she forms relationships and will most likely have a family one day. Yet
she defies me; she confronts me; she has her own taste in food, in clothing, in
entertainment. The way I thought I would be a mother is impossible: it wouldn’t
work for her OR me.
As mothers, we can either resist the shattering of our
dreams, or we can fall into acceptance. We can fight and be angry or sad that
our child doesn’t check off the boxes we expected him to. Or we can relax and
rejoice in the boxes our child does check off.
We have a choice: to parent the child we created in our head or to parent the child we created in reality.
I’m choosing to accept my reality. It’s not easy. In fact,
most days it is just plain exhausting. But it’s what is best for me and what is
best for her. And the less time I spend resisting reality, the more energy I
have to be there for my little one.
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